We’re creating a centralised resource to facilitate access to the best available information, services and support for those impacted by hereditary cancer.
Our resource is for anyone seeking to determine if they have a hereditary cancer risk and for those managing a known inherited cancer predisposition.
This includes those unaffected by cancer but concerned about risk given their family history or ethnicity, and those with a cancer diagnosis wanting to know if it is hereditary given potential implications for treatment and relatives.
Our information and signposting are specifically designed to help individuals and families make informed decisions about hereditary cancer testing and risk management, rather than serving as a general cancer resource.
The resource will include a bespoke digital app and parallel website offering easy to navigate, 24/7 content for people to process in their own time, wherever they are on their hereditary cancer journey.
considering genetic testing for HC risk
Going through Genetic Testing
Processing Genetic Testing Results
Exploring risk management options
talking about HC risk with family
A broad range of information and signposting needs will be covered, such as:
Information about:
Signposting to:
Analysing uptake and user feedback data from our information and signposting resource will enable us to assess impact, and to identify priority needs of those impacted by hereditary cancer going forward. Our future work will be informed and directed by these insights, and by the funding available.
Projects may well include developing our resource to cover content addressing newly identified needs; targeted efforts to reach under-represented user populations so to reduce inequalities; and collaborating with patient groups to advocate for critical services to address the identified needs of the hereditary cancer community.